Results for rare metabolic storage disorder
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ndrdvirtualmed.com
Neurodevelopment in Rare Disorders (NDRD) Home
The NDRD was started in 2000 because of the need to help children and their families understand the overall impact of rare genetic, neurological diseases. While the program initially focused on lysosomal storage disorders, it has now expanded to
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ndrdvirtualmed.net
NDRD: Program for the Study of Neurodevelopment in Rare Disorders
The NFRD was started because of the need to help children and their families understand the overall impact of rare genetic, neurological diseases
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littlemisshannah.com
Little Miss Hannah - Fight against Neuronopathic Gaucher's Disease type 2/3 — Our F
Hannah Ostrea's journey and fight against neuronopathic Gaucher's disease, an extremely rare and fatal life-limiting genetic metabolic disease. As a result of raising a medically fragile child with this rare disease diagnosis, I have become a
