The Pheochromocytoma Paraganglioma Patient Initiative is a non-profit group supporting patients, also known as Troopers, with pheo para. For the patients, by the patients.
Gruppo Otologico è una associazione di eccellenza mondiale che si occupa di chirurgia dell orecchio medio e di chirurgia della base cranica(sordità, colesteatoma, neurinoma, otosclerosi, paraganglioma, neurinoma del nervo acustico, impianti cocleari).La c
The Alliance website is a resource that helps both patients and physicians cut through the maze of information related to neuroendocrine diseases so they can make informed decisions for the treatment of pheochromocytoma and paraganglioma.
To empower and support pheochromocytoma and paraganglioma patients through knowledge, a sense of community, and advocacy while sponsoring key initiatives in data collection, treatment, and patient care.
The Alliance website is a resource that helps both patients and physicians cut through the maze of information related to neuroendocrine diseases so they can make informed decisions for the treatment of pheochromocytoma and paraganglioma.
To empower and support pheochromocytoma and paraganglioma patients through knowledge, a sense of community, and advocacy while sponsoring key initiatives in data collection, treatment, and patient care.
In May of 2013, Anita was diagnosed with Stage IV adrenal cancer. Hers was a returning aggressive, metastatic, malignant and incredibly rare genetic form of cancer known as Pheochromocytoma/Paraganglioma (SDHB); this specific gene mutation effects only on