Results for Epidermolysis
-
johnhudsondilgen.com
JohnHudsonDilgen.com- Recessive Dystrophic Epidermolysis Bullosa (RDEB),
Hi. My name is John Hudson Dilgen. I was born with a rare skin disease called Epidermolysis Bullosa, or EB, which causes my skin to be fragile, to blister and shear off easily. It is estimated that 1 in 50,000 people in the U.S. have some form of EB, yet
-
ebpatient.com
Welcome! Epidermolysis Bullosa - Through the Eyes of a Patient - Butterfly Children
A women with RDEB offers helpful, in depth info about the severe genetic skin disorder Epidermolysis Bullosa. Includes medical care, recipes, links, research updates, support group information and much more. This site is for EB patients, their families, f
-
ebsurvivors.org
United Survivors with Epidermolysis Bullosa :: …for people with EB, made by people w
United Survivors with Epidermolysis Bullosa
-
cure4eb.com
Debra of America - Dystrophic Epidermolysis Bullosa Research Association
The Dystrophic Epidermolysis Bullosa Research Association of America (debra), the only national non-profit dedicated to funding research and providing services and programs for those with Epidermolysis Bullosa, EB - 'the worst disease you've never heard o
-
cure4eb.org
Debra of America - Dystrophic Epidermolysis Bullosa Research Association
The Dystrophic Epidermolysis Bullosa Research Association of America (debra), the only national non-profit dedicated to funding research and providing services and programs for those with Epidermolysis Bullosa, EB - 'the worst disease you've never heard o
-
debra.org
Debra of America - Dystrophic Epidermolysis Bullosa Research Association
The Dystrophic Epidermolysis Bullosa Research Association of America (debra), the only national non-profit dedicated to funding research and providing services and programs for those with Epidermolysis Bullosa, EB - 'the worst disease you've never heard o
-
irefuseeb.org
What is the I Refuse campaign for Epidermolysis Bullosa Awareness
I Refuse is a campaign used to reach out to others and get them involved in raising awareness for Epidermolysis Bullosa and supporting the research for a cure.
@Christiezink
-
jgsf.org
EB Research Partnership, epidermolysis bullosa
We are the largest nonprofit dedicated to funding research to treat and ultimately cure Epidermolysis Bullosa (EB), a devastating genetic disease.
-
debra.nl
Debra Nederland - Nederlandse Patiëntenvereniging voor mensen met Epidermolysis Bullosa
Nederlandse Patiëntenvereniging voor mensen met Epidermolysis Bullosa
-
ebkids.org
EBMRF - Epidermolysis Bullosa Medical Research Foundation
The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful treatments, and ultimately, its cure.
-
nysceb.org
NYSTEM Consortium on Stem Cells in Epidermolysis Bullosa
Check out this GoDaddy hosted webpage! http://nysceb.org.
-
ap-advertising.com
Greta Milán
Julis Schmetterling, Leben mit Epidermolysis bullosa
-
silviaskingdom.com
~Silvia's Kingdom~ My Castle in the Clouds~
mother of a child with a dreadful and devastating genetic skin disorder called epidermolysis bullosa offers help and awareness about the disorder and help coping with pregnancy loss
-
thebutterflynetworkhere2help.com
The Butterfly Network Here2Help - Welcome
The Butterfly Network is dedicated to assist in supporting people affected by Epidermolysis Bullosa (EB) around the globe. Our goal is to assist with wound care and other EB related items. The Butterfly Network works with Clarity, Honesty and Love.
-
ebnurse.org
EB Nurse | EBnurse.org
NR Supporting the Epidermolysis Bullosa Community | ebnurse.org | Epidermolysis Bullosa is a genetic disorder that results in fragility of the skin and, in some cases, other organs. Blisters and/or erosions form as a result of friction, rubbing or trauma.
-
wwfeb.org
Wayne-Westland FRIENDS of EB - Welcomes you.
OUR MISSION To support the needs of families in the greater Wayne-Westland areas who have EB (Epidermolysis Bullosa), to promote EB awareness and education, and to encourage those searching for a cure.
-
alligatura.com
Startseite - Alligatura Med. Consilium GmbH
Alligatura - Ihr bundesweiter Ansprechpartner für die Versorgung von chronisch seltenen Hautkrankheiten, insbesondere von Epidermolysis Bullosa.
-
eborfoundation.com
EBor Foundation
The EBor Foundation is a brand new Foundation that centers around Bor Verkroost. His hopes and dreams, but also his personal difficulties in life trying to coop with a very rare genetical disorder: Epidermolysis Bullosa.
-
virginiaclinicalresearch.com
Virginia Clinical Research Inc.
Virginia Clinical research studying dermatology, skin diseases such as sarcoid, hand eczema, acne, psoriasis, baldness, lichen planus, wrinkles, epidermolysis bullosa, onychomycosis, toenail fungus.
-
alligatura.net
Startseite - Alligatura Med. Consilium GmbH
Alligatura - Ihr bundesweiter Ansprechpartner für die Versorgung von chronisch seltenen Hautkrankheiten, insbesondere von Epidermolysis Bullosa.
-
bontasemanuel.info
Emanuel Bontas-viata cu epidermoliza buloasa congenitala distrofica
Emanuel Bontas sufera de epidermoliza buloasa congenitala distrofica-epidermolysis bullosa dystrophica-boala genetica rara.Emi are nevoie de ajutor.Doneaza
-
col7.info
Welcome to the Frontpage
The aim of this COL7A1 GENE MUTATIONS DATABASE is to collect mutations related to Epidermolysis Bullosa Dystrophica (EBD) and their clinical information in order to deepen our knowledge of EBD. Both original and extracted data from published papers are ac
