The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria, focusing in particular on the prevention and treatment of acute attacks, to provide information and support to families affected
The mission of the European Porphyria Initiative (EPI) is to present an up to date approach to the understanding of porphyria, focusing in particular on the prevention and treatment of acute attacks, to provide information and support to families affected
Find information about acute intermittent porphyria including treatment options, helpful resources for living with AIP, and support program information.
Find information about acute intermittent porphyria including treatment options, helpful resources for living with AIP, and support program information.
Find information about acute intermittent porphyria including treatment options, helpful resources for living with AIP, and support program information.
Find information about acute intermittent porphyria including treatment options, helpful resources for living with AIP, and support program information.
Find information about acute intermittent porphyria including treatment options, helpful resources for living with AIP, and support program information.
porphyria.org is your first and best source for information about porphyria . Here you will also find topics relating to issues of general interest. We hope you find what you are looking for!
porphyria.eu is your first and best source for information about porphyria . Here you will also find topics relating to issues of general interest. We hope you find what you are looking for!
In this remarkable book, Desiree Lyon Howe offers a rich discussion of the porphyrias, a group of rare metabolic diseases. New members of the APF receive this book for no charge (a $20 value).